Today, I had extreme muscle weakness. I felt like I had weights hanging from my muscles. Mu neck and jaw was extremely heavy. I felt like I had concrete for bones, and I had something tied around my neck causing lack of blood flow to my head. I have been having cramps around the artery on the right side of my neck and a headache, on and off. My right eye has felt like the lens is flipping, not wearing contacts, which I have actually had the lens fold up in my eye, can't remember which one though. I have been having problems with breathing, not asthma, but just tiredness. I am really tired and cranky. My digestive system is being way way to loud. I feel like I am playing the tuba. My intestine is swelling and unswelling. My right foot is still so sensitive that it feels like it is being broke if I touch anything. The nerves are irritated so bad, it makes me scream. I am unable to eat because of being so sick to my stomach. I do not throw up but I have gotten so close to it.
Today is not a horrible day, just not a good one. My balance is off, my blood pressure is way too high, and I am having really bad duh momments.
I have been working on my son's baby quilt and it is almost done. I have only been working on it since 2007. It is printed cross stitch, so it is not that hard to do. There is no needle work that has to be done besides that. I try to work through my hands going completely numb when I hold a needle, and the pain in my neck. After his is done, then I have to get to work on Arianna's. Her's does not have as much work to be done on it, and I also have an ABC thing that is half done. That one requires alot more detailed work. I am also, going to do my best to make my kids costumes this year. I want to have their blankets finished and the ABC framed for christmas. I know that I am asking alot for me, but I want to do these things.
I also, have to start weeding out all of the stuff that we have collected through the years and get those things ready for a yard sell. We are planning on moving back home so I can have help with raising these children and giving them a full and rich life. I am so disappointed in the mother I have become, and I am doing everything I can think of to change it. I can not see any specialist, due to money because they require travel, time away from home, my husband has no time off of work, I have physical problems with flying, and no one can help me.
When I fly, this has happened every time, even before the first pregnancy, I had to take my shoes off and completely unlace them. My feet hurt so bad from the swelling, that I wanted to cut them off. My arms became swollen and numb, I became sick to the point of holding the bag, I would have trouble breathing (high alt), and tunnel vision. I almost become violent with my body, how to explain, my nerves cause so much pain that I could peal my skin off with a paring knife, cut my legs and arms off, beat myself into unconsciousness. That is just how I feel, not with anyone else just me. Of course, when I get off the plane, I am disoriented and unbalanced. I feel so drugged up that I don't make a whole lot of sense and then I sleep, too sound, and it takes a couple of days to recoup. So flying for me is an emergency situation. And since my diagnosis, I will probably have to try to get some type of oxygen thing to carry on the plane to wear. I am getting tired and need to get sleep. Later gater.
Have you tried a gluten/wheat and dairy free diet?? It might help??!! I know if I eat any dairy at all I get violently ill almost immediately then the lingering joint pain, headache, feels like my body weighs a million pounds thing lingers for days and days. Gluten/wheat doesn't make me as violently ill immediately but it does make me dumb as a rock with horrific pain that makes me unable to do anything at all.
ReplyDeleteI have tried that. Years ago, I tried the false fat diet, it started you eating only certain foods that were not suppost to be trigger foods. I started it and on the third day, I did a detox drink, lemon juice, honey, and cayanne pepper. As soon as I drank it, I doubled over in pain, my stomache almost burst. So, I then found out that I can not do red pepper. Green peppers always made me sick, and I was addicted to things like pepperoni, kraft mac and cheese, cheezits, hot dogs, and other things. The bad thing is that red pepper is not always labeled. If it does not specify, and it just says spices, then it is in there. You can also tell, like if you look at hot dogs next time you go to the grocery, some are redder than others. So, I feel better when I cut it all out, but I ended up in the emergency room when I ate at a chinese resturant and they cooked my stuff in the same pan that they cooked up a cayanne pepper dish. I had blisters down my throat. So, if I cut it out, eventually it will kill me like the way a peanut allergy would kill someone. I have to keep eating it to keep my immune system in check. But when I am having a horrible digestive day, for me the best thing is Wheatable crackers and ice cream.
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