Today was a different day. My hubby went back to work, still dealing with the Vertigo. And now the kids are having to get used to the fact that daddy will not be here. I also, am having the hardest time doing this on my own. This morning, the maintenance came in to clean the chimney and dryer vents, so that woke up the kids. I got up and was so tired I could barely see straight. On Sunday, I slept on the couch until 4 in the afternoon, and yesterday, I was not able to lay down. The kids wanted to be up playing and running through the house. Charles actually took his nap today without any protest and Arianna was a sleep, so I did not get to take my nap due to the hubby coming home on break to eat.
I am a person that is in so much pain and aches, that I wish I could lay in bed. I get up in the morning, walking like I have broken glass through out most of my body, and I have to get up to change my children and keep them out of harms way or harming something. They will not allow me to put them in the high chair all day, so I am then forcing myself to do things that I do not want or feel like doing. I have to go sit on my sons bed if they are playing in their room so they can include me, and stay out of trouble. I am only able to sit on the floor for a few mins before my legs hurt, like someone is beating them with bats. Then if I have to bend over, I get sick to my stomach, it feels like my intestines is going to explode, and sometimes, my neck starts pulsating and so does my head, like the circulation has been cut off of the right side. I could collapse from standing from any position with out warning.
I have taught myself to lay down whenever, or where ever I am if I get the burning sensation in the back of my neck or really light headed with the tunnel vision. This gets me the funniest looks from people when I am laying in a aisle at the Grocery store or doctors office. We always try to keep the toys picked up in the living room in certain spots, so I do not hurt myself.
When I do anything, my heart beats funny, I get tunnel vision (sometimes), lightheaded, weak, collapse, angry, muscle aches or weakness, and lay down. This includes, washing baby bottles, folding clothes, vacuuming, making the bed, dressing the kids, playing on the computer, talking, etc.
Now according to the doctor, my heart is back to almost 100% and everything is within normal range. My blood pressure is not controlled. Once day It might stay below 110/70 with an occasional jump up or down and other days it might stay above 140/90 with an occasional jump up or down. Then there are the days were it will be approx. 168/112 at wake up, get out of bed and then it is 100/62, then it is 137/82. This would be in 2 mins, and go like that all day long. My blood pressure changes from what side I lay on, right side low, stomach, lower, left side, 30 to 50 points higher, and back is low.
I am on a roller coaster allot and it does not stop once I am on it. Since I was diagnosed On January 18, 2010, they gave me Mestinon 180mg Time control, once a day. Since that day my hair has grown and grown. That just proves that I am getting oxygen to the scalp now. But since then, things are worse in some ways, and better in others.
I now am getting a pulling sensation in my neck on the right side, where the carotid artery is http://en.wikipedia.org/wiki/File:Gray513.png. It kinda feels like when you are getting your blood pressure taken and the cuff fills up too full.
I get spasms or twitches in my left eye that you are able to see at a distance. I am tired and sleepy. I will continue posting what is going on with me later. This is kinda a journal and I do sound stupid and non educated in my writings sometimes, so please forgive me.
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